External links

Here are a selection of links to some outside organisations and groups that may be of interest:

Brains for Brain (http://www.brains4brain.eu)

Canadian Organization for Rare Disorders (www.raredisorders.ca)

CLIMB – Children Living with Inherited Metabolic Diseases, UK – (www.CLIMB.org.uk)

EURORDIS – European Organisation for Rare Disorders – (www.eurordis.org)

ESGCT – European Society of Gene and Cell Therapy – (www.esgct.eu)

GARD -Genetic and Rare Diseases Information Center – (www.rarediseases.info.nih.gov)

 

Lysosomal Disease Network (www.lysosomaldiseasenetwork.org)

LDA – Lysosomal Diseases Australia – (www.lda.org.au)

LDNZ -Lysosomal Diseases New Zealand – (www.ldnz.org.nz)

LSDSS – Lysosomal Storage Disorders Support Society – (www.lsdss.org)

National Gaucher Foundation (www.gaucherdisease.org)

NORD – National Organization for Rare Disorders, USA – (www.rarediseases.org)

NTSAD – National Tay-Sachs and Allied Diseases Association – (www.ntsad.org)

NZORD – New Zealand Organisation for Rare Disorders – (www.nzord.org.nz)

ORPHANET – The portal for rare diseases and orphan drugs (www.orpha.net)

The Hide & Seek Foundation for Lysosomal Disease Research (www.hideandseek.org)

Vaincre Les Maladies Lysosomales (www.vml-asso.org)