• Register
  • Members Log In
  • Home
  • Get Involved
    • Become a Member Laboratory
    • Member Registration
    • Apply for a Scholarship/Fellowship
    • External links
  • News
  • Events
    • Forthcoming Events
    • ESGLD Workshops
    • Past ESGLD Workshops
  • Society
    • Society Objectives
    • History
    • Officers
    • European Working Group on Gaucher Disease: the EWGGD
    • ESGLD Constitution
  • Gallery
  • Members Pages
  • Contact us

Pompe Preceptorship

August 16, 2019
by Oriana Mandolfo
0 Comment

A Pompe Preceptorship will be hosted by Mark Holland (Metabolic Unit, Manchester) on Thursday 3rd & Friday 4th October 2019.

The details of the event are listed below:

Venue: Mercure Hotel, Manchester Piccadilly, M139WU
Audience: All medical staff
Funding: Places are limited and funding for this event will be available

Topics to be included:

  • Biochemistry & Genetics of Pompe Disease
  • Infantile & Adult Pompe Disease
  • Metabolic Myopathy
  • Benefits of exercise in Pompe Disease
  • Nutrition in Pompe Disease
  • Respiratory function
  • Palliative care
  • Research in Pompe
  • Future of Gene Therapy
  • AGSD – Patient Society
  • Patient’s Experience of living with the condition
  • Case Studies.

Pompe Preceptorship agenda 2019

 

For further information and to request a registration form please contact: Karen Wynne, Mark Holland Metabolic Unit, Email: karen.wynne@srft.nhs.uk
Telephone: 0161 206 4365

Supported by an Educational grant, from Sanofi Genzyme, This is an independent meeting and Sanofi Genzyme has had no input into the programme or speakers.

 

 

About the Author
Social Share
  • google-share

Most Recent News

  • 24th ESGLD Workshop & Graduate Course – UK 7th-11th September 2022 4th February 2022
  • Valuable Lysosomal Data made available again! 15th November 2021
  • MPSII Clinical Trial Project Manager 8th November 2021
  • MPSIIIA and MPSII Clinical Trial Project Manager Roles x 2 – deadline 6/10/21 1st October 2021
  • Commemoration Meeting Prof. Milan Elleder – 5th October 2021 24th September 2021

News Categories

  • Events (28)
  • Job Vacancies (6)
  • News (24)
  • Past Events (8)
  • Uncategorised (8)

News Archives

  • February 2022 (1)
  • November 2021 (4)
  • October 2021 (1)
  • September 2021 (2)
  • August 2021 (1)
  • June 2021 (2)
  • May 2021 (2)
  • April 2021 (1)
  • March 2021 (1)
  • November 2020 (2)
  • October 2020 (5)
  • March 2020 (1)
  • October 2019 (2)
  • August 2019 (1)
  • March 2019 (6)
  • February 2019 (2)
  • November 2018 (2)
  • April 2018 (2)
  • February 2018 (7)
  • September 2017 (1)
  • May 2017 (1)
  • November 2016 (1)
  • September 2016 (3)
  • August 2016 (1)
  • July 2016 (1)

Contact ESGLD

For further information please contact:
Prof. Dr. Paul Saftig
Biochemisches Institut
CAU Kiel
Olshausenstr. 40
D-24098 Kiel
Germany
Tel: ++ 49-(0)431-8802216
secretary@esgld.org

Pages

  • Home
  • About the ESGLD
  • Members Pages
  • Forthcoming Events
  • Contact us

News Categories

  • Events
  • Job Vacancies
  • News
  • Past Events
  • Uncategorised
2017 ESGLD
Joanna Craig Website Design