A Pompe Preceptorship will be hosted by Mark Holland (Metabolic Unit, Manchester) on Thursday 3rd & Friday 4th October 2019.
The details of the event are listed below:
Venue: Mercure Hotel, Manchester Piccadilly, M139WU
Audience: All medical staff
Funding: Places are limited and funding for this event will be available
Topics to be included:
- Biochemistry & Genetics of Pompe Disease
- Infantile & Adult Pompe Disease
- Metabolic Myopathy
- Benefits of exercise in Pompe Disease
- Nutrition in Pompe Disease
- Respiratory function
- Palliative care
- Research in Pompe
- Future of Gene Therapy
- AGSD – Patient Society
- Patient’s Experience of living with the condition
- Case Studies.
Pompe Preceptorship agenda 2019
For further information and to request a registration form please contact: Karen Wynne, Mark Holland Metabolic Unit, Email: karen.wynne@srft.nhs.uk
Telephone: 0161 206 4365
Supported by an Educational grant, from Sanofi Genzyme, This is an independent meeting and Sanofi Genzyme has had no input into the programme or speakers.
For further information please contact: