A Pompe Preceptorship will be hosted by Mark Holland (Metabolic Unit, Manchester) on Thursday 3rd & Friday 4th October 2019.
The details of the event are listed below:
Venue: Mercure Hotel, Manchester Piccadilly, M139WU
Audience: All medical staff
Funding: Places are limited and funding for this event will be available
Topics to be included:
- Biochemistry & Genetics of Pompe Disease
- Infantile & Adult Pompe Disease
- Metabolic Myopathy
- Benefits of exercise in Pompe Disease
- Nutrition in Pompe Disease
- Respiratory function
- Palliative care
- Research in Pompe
- Future of Gene Therapy
- AGSD – Patient Society
- Patient’s Experience of living with the condition
- Case Studies.
For further information and to request a registration form please contact: Karen Wynne, Mark Holland Metabolic Unit, Email: firstname.lastname@example.org
Telephone: 0161 206 4365
Supported by an Educational grant, from Sanofi Genzyme, This is an independent meeting and Sanofi Genzyme has had no input into the programme or speakers.